Thursday, April 30, 2009
All our love.
Wednesday, April 29, 2009
Sunday, April 26, 2009
Ryan Ashworth is the fourth child and middle boy. He has followed in Robert's footsteps with baseball and is a talented player on the Las Vegas High School team. He is funny and crazy. His sisters say he finds way too much enjoyment in torturing them! :) He is 16 years old and watch out he has his drivers permit and cannot wait to get his license! Here is what he has to say:
*Robert is still feeling the crummies. He has mucuositis in his throat--the chemo kills all cells, the fastest growing cells first--including the mucous cells in his throat. The lining of his throat and esophogus cells aren't able to reproduce, so it has allowed Robert to get sores in the back of his throat. This makes it even harder for him to swallow and eat. That made him feel extra crummy this morning, but he is feeling better this afternoon. This problem will go away as his blood cell count numbers come back up. His neutrophil count is .1, so he is still neutropenic. This is the lowest he has been so far, and as low as he can go! There is only up from here! They are hoping his numbers start coming back up in the next five days or so. In the meantime he is sleeping a lot. He has gone within, to practice his health regeneration Jedi mind tricks! Awesome!
Friday, April 24, 2009
Well the story here is that Ashley is a bit of a movie buff! And when she loves a movie, she really loves it! One movie that she fell in love with was Moulin Rouge--and it's sound track. The song, "Come What May" in particular. So it was no surprise that she chose that song to be sung at her wedding for the first dance by these two adorable people . . .
Never knew I could feel like this
Come what may, come what may
Suddenly the world seems such a perfect place
Come what may, come what may
Suddenly the world seems such a perfect place...
Come what may, come what may
They had no idea on that beautiful day how those lyrics would play into their life. That 'come what may' included leukemia and fighting as a true Super Hero Couple! Their love and strength through this ordeal has been truly inspiring!
Just reading the lyrics wasn't the same for me, so I found this video to post. Not the best sound quality, but a good basic song presentation! I hope you enjoy it! I might reccomend grabbing a tissue or two--maybe I just needed them because I am prego and hormonal.
I think it is more because the story playing out in Robert's and Ashley's lives is so touching. It is real, and sometimes raw, and it reminds me daily to love my husband and family all the time, every day! Come what may!
Thursday, April 23, 2009
When Robert and Ashley first adopted Daisy she was so tiny she could go under the couches. When you run away from her and go on the other side of the couch she would cheat and disappear under the couch and get you from the other side. When you would run after her she would yet again disappear under the couch so you couldn't get her.
Daisy was taught not to bite when she plays with people, but one day one of the siblings were playing with her and she started to bite them. As they were playing, she would bite down harder and harder and then sibling said "Ouch," and she stopped and licked the ouchie better. She was taught well by her owners!
Daisy misses Robert and Ashley so much. You can tell by the way she follows them to the door when they leave. When she realizes she isnt going home with them her head is lowered. Daisy is very loved and we are happy that Robert has her to help him through this life changing experience.
Tuesday, April 21, 2009
Sunday, April 19, 2009
Saturday, April 18, 2009
That's no Kool-Aid... Yes, that would be Robert's green pee. Blue chemo+Yellow pee= yeah... you get the idea. Robert got his first chemo today, 2 bags, one blue, one clear. The interesting thing is I think the clear one has more possible side effects. Go figure. Weird stuff. Robert is doing well. The chemo takes a couple of days until it makes him start feeling yucky. So he has been feeling fine. They are starting him on antibiotics to try to prevent any infections, plus keeping him on the ones he has been taking for his colitis. So we are hoping that will keep it all in check.
Trying to fatten Robert up is no easy task. It's like trying to convince a picky kid to eat their veggies. Ok, I might be exaggerating a bit. But I try to get him to eat everything, literally, and I would say I get shot down on about 50% of things. (Some things I know he doesn't like, but I ask anyway, can't help it. Note, Robert is not about peanut butter these days. More delicious Reese's for me.) He has been eating more, but of course, I wish it was even more. 132 lbs. isn't making me so happy. Luckily he has been more willing to go the Ensure route. I got In-n-Out today, to my dismay Robert only wanted fries and a chocolate shake. What?? No juicy Double-Double? But, I'll take what I can get.
Hopefully this hospital stay will be a short one. Robert and I are in complete awe of how many people are so willing to do so much for us. Thank you for all they prayers, support and love. We are so grateful. We love you all.
P.S. The purpose of all my fundraiser dinner typing was to tell you that our date is Saturday May 16th! That much I know for sure! So save the date! Somehow I didn't get that into the post, must by my pregnancy induced CRC (can't remember crap!)
Robert is feeling well, just resting! They ditched my dinner plans last night anyway to hang out with the Ashworths, can't say that I blame them! The Ashworth's are a pretty fun and awesome bunch! They were working on a fun picture/slide show/video project for Ken Ashworth's big dinner fundraiser next Friday April, 24th! Oh, and speaking of dinner fundraisers we have a date for ours (put together by the Squires family, and generously hosted by the Ashworth's grandparents). We are still working on the nitty gritty, but hope to have all that information together by Sunday! You'll know as soon as we firm everything up!!!
So good things are happening all around! Thank you for the love and support on the auction! Did I mention on here yet that we extended it for some gorgeous jewelry made by our very own Aunt Lara Squires? Check it out here!
Wednesday, April 15, 2009
Robert is feeling well today. He has been taking it pretty easy and was tired this evening! I would love them to be granted one more night at home, because when we thought they wouldn't be going to the hospital till the weekend of early next week I made dinner plans with them. Alas I understand that this story revolves around Robdob, and not myself--just know I will make them a yummy dinner either way!
And I'm working on some more cute posts! Collecting pictures and such! Should get fun and funny around this blog!
Tuesday, April 14, 2009
Monday, April 13, 2009
Amanda came with us to SLC to give blood for Huntsman's records, and Linda joined us too. It was a 2 day partay! (Ok, really, not so much. But fun all the same.)
Robert outside the Huntsman Clinic, it is huge!
Our future home for at least 100 days! SLC here we come. (We're just glad it wont be as hot as Tucson! Blah!)
Wednesday, April 8, 2009
Come check it out here!
Sunday, April 5, 2009
Most embarrassing moment?
When I said the pledge of allegiance, and I was supposed to be saying the prayer!
Most happy when?
Pooping (Such a boy! :)
Biggest waste of time?
Pooping. (Wait, how does that work out?)
The nicest thing anyone has ever done for you?
Save my life.
(need details on this one!)
If I knew then what I knew now?
I would warn Robert about sickness.
I roll my eyes too much!
What is your favorite possession?
Which is a better pet? Dog or cat?
If you had to live somewhere for the rest of your life, where would it be?
In a mansion with everything I want.
What makes you laugh?
What is your favorite color?
Wednesday, April 1, 2009
Well at least he enjoys the mashed potatoes. Ensure, not so much. I have to force drink him.
Robert is still feeling "icky". But he has been getting better. We're just hoping this infection goes away for good. He has been tired and I have to force him to drink and eat still, but when your food isn't very exciting and you don't feel so hot, it makes it kind of hard. But things are looking up!
We both just want to say thank you so much for all of your love and support. We are overwhelmed by how willing people are to help us in so many ways. Thank you for all the prayers, they help so much more than you know. Much love.