Sunday, May 31, 2009
Robert did a lot of this last week. He is getting platelets and hydration tomorrow, so there will be more of this tomorrow. We are hoping that he wont have as much of it this week though, more time to hang out at home would be fabulous. So hopefully his numbers will come up and stay up. We are going to Utah sometime this soon, possibly the end of this week, so the Docs there can see Robert, do some tests and figure out what will be the best plan for Robert. As for now we are just letting him get the rest he needs and trying to fatten him up. I am loving every minute of it. I love him. He is the greatest. We love you all.
Friday, May 29, 2009
Isn't Daisy adorable? She was so excited to have Robert back around. Oh how she loves Robert. She loves me too, of course, but with her and Robert it's different. They have a bond. Maybe because Robert wanted her all along, I kind of had to be talked into it a bit, I really think dog's know that kind of stuff. Either way, we love having her in our little family. She is so fun. We will really miss her while we're in Utah.
Robert's numbers have been a little low since he got our of the hospital. Which is why he is getting blood today. He still gets worn out easily and tired, but his energy is slowly improving each day and moving around is getting easier. His appetite has been a lot better. He lost about 10 pounds this last hospital visit, pounds that he needs. He weighs about the same as me right now. Honestly. So we are trying to pack on the pounds before his transplant. Things are coming together for his transplant, we are hoping he will be getting it in about 3 weeks, maybe a little less. He re-did his echo-cardiogram yesterday and they gave him a pass. Yay! His heart is good to go. He still needs a lumbar puncture, but they can't do that until his platelet count is above 100. It is around 30 right now. They will do a lumbar puncture to see if there are any leukemia cells hanging out in his spinal fluid.
Things are going well, it's been so nice to sleep in our own bed and get away from hospital food(Sighs with enjoyment at the thought). We wish we didn't have so many appointments, but we know it's better than being in the hospital, so we are just grateful! Thank you for the prayers, concern, love. All of it. We love you all.
Sunday, May 24, 2009
Thursday, May 21, 2009
Robert continues to improve everyday. It is getting easier for him to walk, and get around by himself, although walking the shortest distances even wipes him out. His white count is 5.7 today. Which is good. Usually by this time it would be quite a bit higher, but with everything his body has been through it has taken a bit longer this time. Robert's results from his gall bladder ultrasound was normal, which rocks. His liver has been improving slowly, and he is off his IV nutrition. YAY! So he has been slowly eating a little bit more since coming off of it. We are hoping to be able to go home tomorrow. Dr. Gollard said it was a possibility, but he wants to see what his platelet count is tomorrow, to see if it can hold it's own, since he has been getting platelet transfusions almost daily. Platelets are the last of the blood counts to recover after chemotherapy, it just takes them a little bit longer. So if they hold their own, and Robert is doing well, tomorrow might be the day! It marks our 5th week being here this hospital stay. So it's safe to say that we are both welcoming the a-okay to get out of this joint! The thing I most look forward to: sleeping in my own bed, and I think Robert would concur. Dr. Gollard is in cahoots with the Huntsman, figuring out the plan for RobDob. So I will let you all know what I hear in the next week or so.
Thank you again for the prayers, the love, the blessings! I know I say it often, and I will continue to, because I am so grateful. All our love.
Monday, May 18, 2009
7 lbs. 12 0z.
20 1/2 inches
(Lookin' pretty hot for just having given birth Janelle, if I do say so myself. Hot mama.)
Thank you to everyone who went to Robert's fundraiser. We hope you enjoyed yourselves! We're sorry to have missed it. Thank you for the continual prayers. All our love.
Friday, May 15, 2009
About 2 weeks before Robert and I found out his leukemia had come back in February, my parents invited us to spend a weekend with them in Newport Beach, California. We are so glad now that we got to have a mini vacation before everything. It was so nice to relax on the beach and get to spend some quality time together. I can't wait until we get to do it again! Really, I don't care what beach it is, as long as Robert is right along with me (and our spiffy beach towels with our names on them. I know you're jealous ;).
Robert's white blood count is .7 today. So it is making slow, but steady progress. We are hoping it makes a big jump any day now. Robert got an ultrasound of his gallbladder today, while he was in the ICU they thought it might have a problem, so they are doing testing to see what is going on with it. (I'll keep you posted on that). He is still jaundiced from his liver functioning being low, but the Docs are thinking as soon as Robert is off his TPN(IV nutrition), that should really help. So, he is doing well, improving slowly, but it is a wonderful thing.
I can't say how grateful I am to all of you who continually pray for us, read this, and especially being willing to help us financially with your donations. You are blessing our lives so abundantly, and we are both incredibly thankful for everything. You all inspire me daily. Please keep praying for Robert's speedy recovery. All our love.
Wednesday, May 13, 2009
Ashley also shared that along with the beautiful words to 'their song' Come What May, she has found a deeper meaning to the message of these sweet words from this man:
It is such a great message! Sorry the video isn't on the blog, try as I might I couldn't get it to embed! I hope you take the time to watch it, it is two minutes long. Ashley and Robert never cease to amaze me with the depths of their faith and optimism!
We all know that, Come What May, they will love each other till their dying days and beyond, because they were sealed for time and eternity in the temple.
*Robert is doing well today. He was awake more and talked more. He is off oxygen and keeping up his oxygen saturation numbers very well on his own. There is still a little fluid in his lungs, but it is getting better every day. He drank an entire Ensure and had about 15 bites of soup (from the Olive Garden) at one meal. His numbers remained at .5!!! His liver is working too hard right now to help him filter out all of the medications and pain meds he is on, and the IV nutrition can be hard on his liver too. So pray for his liver function to stabilize and for a big jump in his numbers tomorrow! With love and gratitude!
Tuesday, May 12, 2009
Monday, May 11, 2009
Sunday, May 10, 2009
What is your favorite color?
I like all colors. I am quite the colorful person. I particularly enjoy mustard yellow, pea green, and deep teal.
What makes you laugh?
My family, more than anything. Also people’s funny quirks/habits. I love when anyone marches to the beat of their own drum—it amuses and delights me!
If you had to live somewhere for the rest of your life, where would it be?
Anywhere my family was! Or maybe Seattle. LOVE that city.
Describe yourself in one word.
I’m taking the liberty of two: TOTAL SASS.
What is your favorite possession?
My favorite possession is the ukulele I recently inherited from my Grandma Bev. It was handmade in Hawaii and it is GORGEOUS and sounds amazing, too! It would be followed closely by my journals and my cello.
What is your passion?
My passion is beauty. Making life more beautiful, and more worth living. Finding beauty where I don’t expect it. That is a lot of why I have such a creative drive. It is also why I think relationships are so amazing and important, because they bring meaning and beauty to life.
What surprises you most about your life so far?
What surprises me most is how fast it has gone. I remember being eight and truly thinking that I would never be old enough to be in high school. Now high school has come and gone. I think I am always surprised to realize how much of my life is behind me (and I’m only 19!).
Halloween. This may surprise my family, but the other holidays like Thanksgiving and Christmas, I have to share my siblings with their in-laws, and I always miss them! But we almost always get together and have a party on Halloween, and show off our awesome costumes.
Second guessing myself.
Barbecue chicken pizza and raspberries. Always!
Hmmm ice cream ice cream ice cream. And anything I bake. Things always taste the best when you bake them yourself.
So many! I really love Frankenstein by Mary Shelley, Extremely Loud and Incredible Close by Jonathan Safran Foer, and The Book Thief by Marcus Zusak.
If I knew then what I know now?
Then what would be the point of living and finding it out?
The nicest thing anyone has ever done for you?
I always feel so blessed and loved to know that my family is praying for me.
Something no one knows about you?
I have over 50 moles on my body.
Quality you like most about yourself?
I like that I am passionate about things. I love that I care so much; I could never stand being an apathetic or indifferent person.
Biggest waste of time?
Sleeping. Why do we have to do this?
Most happy when?
I am surrounded by family, when I am making something that is beautiful/good, when I am making someone else happy, when I am reading something good.
Most embarrassing moment?
Only every day of my life.
Saturday, May 9, 2009
Friday, May 8, 2009
Wednesday, May 6, 2009
Monday, May 4, 2009
*Robert is doing pretty well. His numbers are .2 today. His oxygen levels are holding well, but his breathing has been a little labored today, so if his numbers are up more tomorrow the doctors would like to drain some fluid from his lungs. They would also like to take him and run their scans on him. His antibiotics are kicking e-coli's butt! He has been awake more today than even yesterday. He is holding steady or improving in every arena he is currently fighting in! Way to go Robdob!!!
Sunday, May 3, 2009
Friday, May 1, 2009
*Robert is about the same today. He is still receiving blood pressure medication and is on an oxygen mask. (We are still waiting to hear the results of his chest x-ray, I'll post as soon as we know.) He hasn't needed to be on a ventilator, so that is good! His blood count remains at .3 and he is receiving a lot of blood products (platelets, etc.). The doctors say that he is responding well to the IV antibiotics that he has been given to fight the nasty E-coli! He is also receiving IV nutrition again today.
The first two nights Robert was in the ICU the charge nurse on the floor was super cool and let Ashley spend the night in Robert's room. The third night (Wednesday) there was a new charge nurse who would not let Ashley sleep in Robert's room, so she slept in the waiting room--she said it was worth it for one night, because she was able to check in on him twice. Last night she was able to get permission to stay in his room again, and we are hoping that holds as long as he is in the ICU. It was a good thing Ashley was there, because Robert kept trying to get up. He was very restless. He kept taking his oxygen mask off and telling Ashley that he needed to get up to use the bathroom. Each time Ashley would hold Robert in bed, ring his night nurse and they would calm him down and convince him that he should stay in bed. We aren't doctors or nurses, but we are taking Robert wanting to get up and his talking as a good sign. Ashley said he was a little fiesty proclaiming, "I can walk!" This was his response to Ashley telling him that he was on too many medications and he didn't have the strength to walk. Robert fiesty? Sounds more like the Robert I know!
I asked Ashley if she was exhausted. She said that she is very tired, but she knows she is sustained by God, we refer to him as Heavenly Father, and your prayers. No matter how tired she is when Robert needs her, day or night, it has been easy for her to get right up and help him. Like last night, getting up those many times, she said she never felt tired while she was taking care of Robert. Ashley is not allowed to be on the ICU floor (no one besides patients and hospital staff are) from 6:30-8:00 in the morning and at night. This is when the doctors and nurses do their rounds. Ashley leaves the hospital around 6:00 am. and takes a two hour nap in her own bed, showers and returns to the hospital. At night someone from the Squires or Ashworth family meets Ashley near the hospital to hang out with her and have dinner! It makes it easier for her to be away from Robert when she knows he is alone!